I was 23 when the first signs of dystonia, in my case spasmodic torticollis, appeared. I was living in León, Spain, working as an English language assistant in a secondary school by day and an English language tutor by night. All was well until one day, walking down a street, I felt a small…
Dystonia Europe and Childhood Dystonia Awareness UK
Last January we were planning the webinar on Children, Dystonia and DBS. Dystonia Europe was then put in touch with Adrian Hutchings from Childhood Dystonia Awareness UK support group. We connected and discussed the possibilities of how we can work together to advance the knowledge and understanding of children affected by dystonia. As well as…
Press Release article 2025-03-17 Popular muscle imbalance book updated and translated into English
The popular and richly-illustrated book ‘Muscle Imbalance’ is now published in an updated, English version. Written by physiotherapist Johanna Blom, it is primarily intended for physiotherapists but can also be used by other healthcare professionals who meet patients with tonus problems in the form of dystonia and spasticity. It constitutes an important new tool that…
Brain Health & Neurological Conditions, European Parliament
Dystonia Europe participated at “Shaping the Future: Policy Responses to Neurological Challenges” 19 February 2025 at the European Parliament, a meeting of the MEP Interest Group on Brain Health and Neurological Conditions at the European Parliament this week, kindly hosted by Billy Kelleher MEP. This meeting was arranged by EFNA (European Federation of Neurological Associations)….
Online Dystonia Day Conference September 2024
The Dystonia Europe Board decided that this year our annual conference day would be held online using zoom. We used this method during the covid restrictions and not only did it work really well it was also a great deal cheaper than a face to face meeting. We all still prefer face to face meetings…
