After twelve (!) years of waiting and five (!) years of preparations we finally gathered in Dublin to convene the Samuel Belzberg 6thInternational Dystonia Symposium. After the Barcelona meeting in 2011, we heard that it was the best dystonia symposium people had ever attended; we hear now that the 6th one was even better! Three days…
Survey on the Use of Non-Traditional Therapies – take part!
Have you ever used acupuncture, herbal medicine or any other alternative treatment for your dystonia? In this survey a research group from Dublin aim to investigate the use of non-traditional therapies (herbal medicines, acupuncture, CBD oil) in people with focal dystonias. The survey should take less than 10 minutes to complete and asks about the…
Excessive Psychological Stress can trigger the Onset of Idiopathic Cervical Dystonia
Q: Professor Dressler, you have just completed a study on excessive stress triggering the onset of idiopathic cervical dystonia. What is the background? Dressler: Idiopathic cervical dystonia is by far the most common form of cervical dystonia. Idiopathic means that there is only cervical dystonia and that it occurs without any identifiable cause. Genetics appear…
Webinar on DBS for Dystonia
Last June there was a webinar on DBS (Deep Brain Stimulation). This webinar was mainly for patients and focused on the benefits of DBS for dystonia patients that does not have sufficient effect from other treatments like for example botulinumtoxin and other medication. After Edwige Ponseel, President of Dystonia Europe opened the webinar and welcomed…
Dr. Michael Zech Receives the David Marsden Award 2023
Our congratulations to Dr. Michael Zech, from the Institute of Human Genetics, Technical University of Munich and the Institute of Neurogenomics, Helmholtz Zentrum München, in Munich, Germany and the David Marsden Award 2023 for his paper: Biallelic AOPEP Loss-of-Function Variants Cause Progressive Dystonia with Prominent Limb Involvement. Last July Dr. Zech was presented with the…
