In this episode we get to know Emmanuel Dalmas from France. He tells his very inspiring story of finding success in all aspects of life, in spite of living with dystonia. It took Emmanuel 20 years to receive the right diagnosis, a problem that we hear about all too often. He shares with us what…
The Importance of Physiotherapy and a Collaborative Approach to Treatment of Dystonia, With Physiotherapist Johanna Blom
In this episode we meet with Johanna Blom a physiotherapist who has specialized in helping patients with dystonia. She tells us about how she works with a team of medical professionals to ensure that her patients get the best treatment possible, and she emphasizes on the importance of a collaborative approach when administering injections, medications…
Ten Years of The David Marsden Award, an Interview With Recipients Prof. Mark Edwards and Asst. Prof. Niccolo Mencacci | The Positive Twist Podcast
In this episode of the Positive Twist we meet with Professor Mark Edwards from St George’s in London, and Assistant Professor Niccolo Mencacci at Northwestern University outside of Chicago (USA). Mark was the first recipient of the David Marsden Award in 2003. He tells us about what the award has meant to him and what…
Living With a Neurological Disorder During The Covid-19 Pandemic, A Talk With Donna Walsh and Marjan Jahanshahi | The Positive Twist Podcast
In this episode we talk to Donna Walsh from EFNA, the European Federation of Neurological Associations and Professor Emeritus Marjan Jahanshahi from UCL Queens Square Institute of Neurology in London. We discuss the state of the world for people living with neurological disorders during the Covid-19 pandemic. Donna shares about some of the work EFNA…
How Dystonia Europe Came to Be, and What a Life’s Work in Patient Advocacy Has Brought Alistair Newton | The Positive Twist Podcast
In today’s episode we hear Alistair Newton tell his dystonia story, as well as share with us his important involvement in the dystonia community. Alistair founded Dystonia Europe as a result of being diagnosed with cervical dystonia himself. He has furthermore been involved in many great initiatives for improving the lives of people living with…
