On March 23rd, 2019 A.R.D. held its annual meeting in Hotel Adriatico in Florence; our last meeting in this charming town had been in 2007 and the first one was 20 years ago, in 1999. The title for this year was “Looking to the future: research and experience in comparison” as we wanted to focus…
Living Well With Dystonia – Skiing from Border to Border- Rajalta Rajalle Hiihto
8 – 17 March, 2019 Springtime had already announced its arrival with snowdrops and crocuses around our home, when Lilo and I, together with 13 colleagues of ours started on a trip northward on March 8, eager to participate in a special skiing event, called ‘Rajalta Rajalle Hiihto’: Crossing middle Finland from the Russian to…
Around Europe and Beyond – DRIVE for Dystonia
My story with Dystonia started in February last year. It came suddenly, without any signs of warning. My neck became stiff and my head started to turn to the side. First was there was disorientation – what’s happening to me? Why can’t I control myself? Why is my body not listening to me? Work and…
Boston Scientific Foundation Grant Opportunities
Last year Boston Scientific, innovative medical solutions provider, launched its Boston Scientific Foundation for the EMEA region (Europe, Middle East and Africa) to contribute to society by supporting people in the communities. The mission of the Foundation is to support well-being through innovative solutions. Its strategic focus is to address issues of public interest in…
EU Activities – Brain Awareness by Sharing #brainlifegoals
Brain Awareness Week (March 11 – 17) is the global campaign to increase public awareness of the progress and benefits of brain research. To mark the occasion, EFNA promoted the new #BrainLifeGoals campaign, and encouraged patient advocates to share their goals alongside the hashtag. Sharing #LifeGoals has become a popular trend in social media. #LifeGoals are…
