My story started the summer of 2009, with much discomfort in my eyes. January 2010 I had to stop working and was on sick leave due to extreme sensitivity to light and headaches. I was burned out. I was examined for Sjögren’s disease, infection and different illnesses of the eyes without any results. My eyes…
Cervical Dystonia Patient Journey
The cervical dystonia patient journey was published two years ago. Currently is is being translated into more languages. These are published on the ERN-RND (The European Reference Network for Rare Neurological Diseases) website. https://www.ern-rnd.eu/disease-knowledge-hub/dystonia/ We hope that this patient experience map will support patients who are newly diagnosed as well as other dystonia patients and…
JUST PUBLISHED: The Third New Edition of The Manual of Botulinum Toxin Therapy
The year 2024 begins with a new book: The Manual of Botulinum Toxin Therapy, one of the best-selling botulinum toxin books, has now been published in its third new edition by Cambridge University Press. ‘We are delighted that this book has been able to establish itself over the years as the standard work on…
SPRINT PROGRAM: Sensorimotor Retraining Program For The Re-habilitation of Isolated Cervical Dystonia in Conjunction with Neurobotulinum Toxin
Enrico Saibene, A. Crippa, M. Ramella, G. Giacobbi, C. Corrini, D. Anastasi, A Castagna Isolated Cervical dystonia (ICD) is a movement disorder characterised by intermittent or sustained involuntary contractions that cause altered postures or abnormal movements, also tremors, of the head, neck, with occasional involvement of the shoulders. For about thirty years, the efficacy of…
Board Meeting and Think Tank in Paris
When my dystonia first started I found it very debilitating and would not leave the house on my own. Fast forward a few years, and lots of rounds of botulinum toxin, and here I am travelling around Europe on my own! I love my work with Dystonia Europe and it has given me lots of…
