September 3, 2023

Dr. Michael Zech Receives the David Marsden Award 2023

Our congratulations to Dr. Michael Zech, from the Institute of Human Genetics, Technical University of Munich and the Institute of Neurogenomics, Helmholtz Zentrum München, in Munich, Germany and the David Marsden Award 2023 for his paper: Biallelic AOPEP Loss-of-Function Variants Cause Progressive Dystonia with Prominent Limb Involvement. Last July Dr. Zech was presented with the…

Show this Post ›
July 26, 2023

Unlocking Minds and Opening Doors

As a member of the committee (board) for Action for Dystonia, Diagnosis, Education and Research (ADDER), I was recently asked by our local Neurological Alliance (Neuro Key) to help produce a leaflet as part of their ‘Open Door’ campaign. The campaign has produced several leaflets each one about a different neurological condition with the aim…

Show this Post ›
July 11, 2023

Dystonia Infographics

One of the main activities for Dystonia Europe is to spread information and raise awareness of Dystonia. Therefore we have decided to develop a series of infographics describing dystonia treatments and various types of dystonias in an easily accessible way. We hope you like them and we appreciate your help with sharing these.  

Show this Post ›