November 14, 2022

What is the ERN-RND Network?

  The ERN-RND is a European Reference Network established by the EU to support patients and families affected by rare neurological diseases (RND) which requires very specialised knowledge, treatment and resources. Some diseases are so rare that the necessary knowledge might not be available in the patient’s nearest health centre or country. The patient doesn’t…

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November 10, 2022

Ipsen Patient Advisory Board Meeting in Paris

At the beginning of November Ipsen organized a Patient Advisory Board Meeting in Paris. The goal was to share insights and give input on the Ipsen Patient Centricity Roadmap. The nine participants were patient leaders from both national, European and global associations. Facilitators from MediPaCe led the participants through various sessions on topics relevant to all…

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November 8, 2022

MDS Awards to Dystonia Europe Medical Experts

Honorary Membership Award 2022 to Professor Marie Vidailhet The MDS Honorary Membership Award Program recognizes individuals who have made extraordinary contributions to the field of Movement Disorders or otherwise to the Society. Recipients of this prestigious award shall be entitled to lifetime MDS Membership. Marie Vidailhet is Professor of Neurology at Salpêtrière Hospital, Sorbonne University,…

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November 7, 2022

Annual Conference of “Dystonie-und-Du e.V.”

Annual conference of “Dystonie-und-Du e.V.” sends out a signal of encouragement: Self-help association does not leave those affected and their relatives alone with their worries! From September 9th to 11th 2022, the association “Dystonie-und-Du” met in Dresden. With this event, the self-help association was able to reach many of those affected, their relatives, top-class practitioners…

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