Physiotherapy is an important part of dystonia management, with research demonstrating it can enhance botulinum toxin injection outcomes, helping reduce pain and improving daily functioning. However, in the UK, whilst neurological physiotherapy is recommended in national pathways, patient access remains unclear. Previous research has highlighted challenges in physiotherapy access for dystonia patients, with many only referred if…
The Inspiring Journey of Yannick Paredis
Yannick Paredis was born on March 7, 2004, appearing to be a perfectly healthy baby. His early childhood was filled with the joys of playing, learning, and growing. However, when he was five years old, subtle but alarming signs began to emerge. His teacher noticed that he struggled with his pen grip, and his parents…
Welcome to The Three New Board Members
Salvatore is a Board Member of the Italian Dystonia Association A.R.D. Salvatore works as a technical writer at an international company. He works daily in English, gathering and structuring complex information for a diverse audience. His involvement in technology and AI projects ensures that he remains current with innovative solutions. He possesses a broad understanding…
First Recipient of the Dystonia Europe Grant for Patient Care
Last April Dr. Pollini, Child Neurologist and Psychiatrist from Rome, Italy, received the very first Dystonia Europe Grant for Patient Care. This is a new initiative for prolonged, comprehensive training in Dystonia, in order to get fully experienced doctors that will provide high quality care for patients, disseminate knowledge, connect with patient associations (in their…
Dystonia Europe 32nd General Assembly
The Dystonia Europe (DE) board and members met on Zoom for the 32nd General Assembly on Saturday 10th May 2025. It was lovely to see so many join us for the general assembly. I much prefer face to face meetings, as I am sure you do too, but it is so much more cost effective…
