Medical science has been rapidly advancing in recent decades and we can prove that with many examples: new therapies for diabetes, a vaccine for the prevention of cervical cancer, oral treatments for Hepatitis C curing more than 90% of the cases, the first Lupus drug in 50 years, personalized medicines to treat the most dangerous…
MyBrainNet – a Digital Platform for Brain Diseases
We are very excited to present our new project: mybrainnet. All made possible by the first BMP grant which Dystonia Europe, together with two other projects, was awarded last June in Brussels. The Brain, Mind, and Pain Patient-Centred Innovation Grant has been initiated by Pain Alliance Europe and supported by Grünenthal Group with the main…
EFNA Young People Survey
EFNA represents 20 European and International associations across a wide variety of neurological disease areas such as multiple sclerosis, epilepsy, migraine and ADHD. Consensus among our members is that young people are currently under-represented in their associations. It is also felt that the issues facing young people affected by brain and brain-related disorders are not…
New Way of Thinking (Finland)
My name is Susanne I am 57 years old. I was diagnosed with cervical dystonia in 2011. After an accident my head began to turn to the right. I had earlier symptoms, but thought, it was due to working with a computer. My life changed totally!!! Had to stop working. Even with botulinum toxin treatment my neck…
Heavily disabled – slightly mad!
Germany: Heavily disabled – slightly mad! The original title in German is “Schwer behindert, leicht bekloppt” and it is a book about a special friendship. Author Bernd Mann says: “The fear of healthy people towards disabled persons is as large as the fear of handicapped against the healthy ones. It is the fear of not disabled…