January 15, 2019

France | Lifting the Lid

Professor Brigitte Girard is a specialized ophthalmologist located in Paris, famous in dystonia and blepharospasm.  She’s the Vice-President of AMADYS (French dystonia association) Scientific Committee for many years.  She’s so dedicated to her patients and her field of work that she has decided to write a book on blepharospasm during her spare time and holidays! …

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January 15, 2019

EFNA/BMP UPDATE | Summer 2018

It’s been a busy start to 2018 for the European Federation of Neurological Associations [EFNA]. Training Initiatives for Neurology Advocates  Already, there has been two workshops as part of its Training Initiatives for Neurology Advocates [TINA]– with both including dystonia delegates.    The first was another national workshop in Romania, to celebrate Brain Awareness Week…

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January 15, 2019

Neurology training in Lisbon – Value of Patient Perspectives and Preferences 

Training Initiatives for Neurology Advocates [TINA] workshop took place at the Champalimaud Foundation in Lisbon 17th and 18th of April 2018.    The TINA workshops project was launched in 2016 by the European Federation of Neurological Association [EFNA] and is being continued to teach patients how to use the theoretical knowledge gained on these processes,…

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January 15, 2019

Dystonia Europe on Youtube

Have you seen our Youtube channel? https://www.youtube.com/user/DystoniaEurope Follow us here to get our latest videos! At our 25th Anniversary Conference and D-DAYs 2018 in Brussels we live streamed and video-recorded our event for the first time. About 500 people watched the livestream during the two-day conference. Now all presentations are available on the Dystonia Europe youtube…

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