The Finnish Dystonia Association, a nationwide patient organization, decided to arrange the Dystonia Days Conference in the largest city in Northern Finland, namely Oulu. Some 60 participants assembled to meet people from all over the country, get and give support and naturally, learn from expert speakers, a neurologist, and a neurosurgeon. After two years of…

In October the Norwegian Dystonia Association held their autumn meeting in beautiful Bergen, a city on the west coast of  Norway. Almost 50 people attended the meeting. The key lecture was Physiotherapy by Anette Holmelid Elvik. She had a very interesting presentation. There were lots of questions from the audience. From left: Sissel Buskerud, Anette…

Campbelltown RSL Jump   The Dystonia Network of Australia Inc. (DNA) arose from a support group in the Blue Mountains area west of Sydney. It was incorporated as a national organisation in 2014 and is the peak body for people with all forms of dystonia in Australia. It is a registered charity and run by…

Annual conference of “Dystonie-und-Du e.V.” sends out a signal of encouragement: Self-help association does not leave those affected and their relatives alone with their worries! From September 9th to 11th 2022, the association “Dystonie-und-Du” met in Dresden. With this event, the self-help association was able to reach many of those affected, their relatives, top-class practitioners…

According to the European Brain Council, there are more than 500,000 people living with dystonia across Europe, 100,000 of whom are estimated to live in the UK. While much of our work is centred around the dystonia community here in the UK, Dystonia UK has plenty of resources easily accessible for those across Europe and…