June 17, 2025

Dr. Ahmet Kaymak receives the David Marsden Award 2025

Our congratulations to Dr. Ahmet Kaymak, from the BioRobotics Institute of Scuola Superiore Sant’Anna in Italy who has been selected as winner of the David Marsden Award 2025 for his paper: Spiking Patterns in the Globus Pallidus Highlight Convergent Neural Dynamics across Diverse Genetic Dystonia Syndromes Edwige Ponseel, President of Dystonia Europe said “The Dystonia…

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June 5, 2025

Getting the right care: Physiotherapy for dystonia in the UK

Physiotherapy is an important part of dystonia management, with research demonstrating it can enhance botulinum toxin injection outcomes, helping reduce pain and improving daily functioning. However, in the UK, whilst neurological physiotherapy is recommended in national pathways, patient access remains unclear. Previous research has highlighted challenges in physiotherapy access for dystonia patients, with many only referred if…

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May 25, 2025

EPF AGM and Leadership Meeting

On 24th and 25th May, EPF (European Patients Forum) held their AGM (Annual General Meeting) in Brussels, Belgium. EPF is an independent, non-profit, non-governmental umbrella organisation of patient organisations across Europe and across disease areas. EPF has 78 members in disease-specific patient groups. EPF is active at EU level and national coalitions of patients. Dystonia…

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May 21, 2025

Volunteers Meet for Internal Training in AMADYS

AMADYS, the French association for dystonia patients, gathers its volunteers every two years for a face-to-face day. This year it was January 24th in Paris. Volunteers include our regional delegates, specialists with specific missions (social networks, etc.), and board members. Guest speakers may include specialists on medical or care issues relating to dystonia and children’s…

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