New clinical and rehabilitation perspectives on musician’s dystonia The 7th National Dystonia Day took place in Rome. It is the yearly conference organized by the Italian Dystonia organization ARD (Associazione Italiana per la Ricerca sulla Distonia). As every year, the aim was to help people understand better Dystonia and to improve communication between doctors, patients…
EFNA Conference 2026 in Dublin – From Access to Action
The EFNA Conference 2026 in Dublin marked a special occasion as the European Federation of Neurological Associations celebrated its 25th anniversary. The conference brought together an impressive mix of patient organisations, healthcare professionals, researchers, industry representatives and policymakers – all with a shared ambition to improve the lives of people living with neurological conditions. A…
Dystonia Europe Celebrates Strong Community Engagement During Dystonia Awareness Month 2026
Dystonia Europe is delighted to celebrate the success of this year’s Dystonia Awareness Month, which saw a remarkable increase in online engagement, helping to raise awareness of dystonia and amplify the voices of people living with the condition. Throughout September, Dystonia Europe shared personal stories, educational resources and advocacy messages, as well as the popular…
Dystonia is only one part of who I am
A blog post by Malky Padwa September is Dystonia awareness month. Those who know me well will know more about my life story. It’s not something I share much but not for wanting to hide anything or for being embarrassed of it. Living and flying here in the UK, I choose to focus on…
Dystonia Physio Training at Queen Square Hospital in London
Sharing knowledge, building confidence and improving physiotherapy for people living with dystonia Dystonia Europe was delighted to return to Queen Square Hospital in London for the second Dystonia Physio Workshop, bringing together 20 physiotherapists from the UK, Germany, Ireland and Spain. The day began with Dr Anna Sadnicka, neurologist at Queen Square, who gave an…
