Dystonia Europe has the pleasure of running a training course for qualified physiotherapists in the treatment of Cervical Dystonia. The course will be led by Johanna Blom who has 18 years experience treating dystonia and training other professionals. She has written a book about cervical dystonia and spasticity and in collaboration with Dystonia Europe has…
New Hope for People Living with Dystonia: How DBS Is Evolving
Discover how new technologies are helping doctors better tailor treatment to each patient. Deep brain stimulation (DBS) has been used for patients with severe dystonia, who had no other treatment options, since the mid-1990s. At the end of the 1990s and in the early 2000s, clinical studies showed that DBS of the globus pallidus internus (GPi) is an…
Physiotherapists Train to Improve Dystonia Care
A specialised physiotherapy course focusing on dystonia recently brought twenty physiotherapists to the National Hospital for Neurology and Neurosurgery (Queen Square) in London. Hosted by physiotherapist Hanna Louissant and organised by Dystonia Europe, the workshop aimed to strengthen knowledge of physiotherapy as part of dystonia treatment. Opening the course, Monika Benson emphasised the long-term goal of improving treatment outcomes and quality of life…
From Home: Lived experiences with Dystonia
Isobel Platt, is a Dystonia researcher and medical doctor working at the National Hospital for Neurology and Neurosurgery in England. Isobel recently contacted us to tell us about a collaborative ceramics art project she is working on with artist Zoe Wu, regarding lived experiences with dystonia. Their community project, ‘From Home,’ explores the relationship between…
Dystonia Day 2026 in Malmö, Sweden
Dystonia Day 2026 will take place on 30 May at Hotel Scandic S:t Jörgen in Malmö, Sweden, when we will welcome dystonia patients, their families, caregivers and the medical profession. The program will include patient testimony and expert presentations and there will be lots of opportunities to network and connect with others. Dystonia Day 2026…
