December 3, 2021

Dystonia Physio Exercise HUB – A Digital Platform with Exercises for Cervical Dystonia

Research has shown that Botulinum toxin injections (BoNT-inj) combined with physiotherapy provide good benefit for most people with cervical dystonia (CD).  Advanced treatment with Deep Brain Stimulation (DBS) also requires physiotherapy. Repetition of exercises is important to influence brain remodelling and achieve long-term improvements. Exercises should be individualised according to the pattern, nature and   problem…

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December 3, 2021

Dystonia Awareness Month 2021

Another successful Dystonia Awareness Month has taken place. It is amazing to see all the dystonia awareness activities taking place across Europe and around the world. There were special dystonia days and fund raising activities organised by our member associations. Special social media content with information and education on dystonia was created and shared. In…

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November 25, 2021

DDF and DE met in Copenhagen to plan for Dystonia Day 2022

This week Executive Director Monika Benson met up with Sandra Theil Sörensen from the Danish Dystonia Association. They visited possible venues for the upcoming Dystonia Day 2022 and discussed the program and activities. It is with great pleasure we are collaborating with the Danish Dystonia Association for this face-to-face event. Due to the pandemic we…

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