A specialised physiotherapy course focusing on dystonia recently brought twenty physiotherapists to the National Hospital for Neurology and Neurosurgery (Queen Square) in London. Hosted by physiotherapist Hanna Louissant and organised by Dystonia Europe, the workshop aimed to strengthen knowledge of physiotherapy as part of dystonia treatment. Opening the course, Monika Benson emphasised the long-term goal of improving treatment outcomes and quality of life…
From Home: Lived experiences with Dystonia
Isobel Platt, is a Dystonia researcher and medical doctor working at the National Hospital for Neurology and Neurosurgery in England. Isobel recently contacted us to tell us about a collaborative ceramics art project she is working on with artist Zoe Wu, regarding lived experiences with dystonia. Their community project, ‘From Home,’ explores the relationship between…
Dystonia Day 2026 in Malmö, Sweden
Dystonia Day 2026 will take place on 30 May at Hotel Scandic S:t Jörgen in Malmö, Sweden, when we will welcome dystonia patients, their families, caregivers and the medical profession. The program will include patient testimony and expert presentations and there will be lots of opportunities to network and connect with others. Dystonia Day 2026…
Ask the Expert Webinar (22 April, 2026)
If you have questions about dystonia and botulinum toxin injections, now is your chance to ask the experts! On Wednesday, 22 April, 2026, from 18.00 – 19.00hrs CET, Dystonia Europe will hold a webinar with two dystonia experts, and the audience will be invited to share their questions with them. Our expert panelists are: Dr…
Board Meeting and Think Tank in Dublin
Dystonia Europe board members and staff met in Dublin, Ireland, early February 2026. This was a nice easy journey for me, only one short flight from my home town Newcastle, England, to Dublin.Once in Dublin airport I bought a 3 day ticket for the local bus service then met Merete and Catalina to travel together…
