A blog post by Malky Padwa September is Dystonia awareness month. Those who know me well will know more about my life story. It’s not something I share much but not for wanting to hide anything or for being embarrassed of it. Living and flying here in the UK, I choose to focus on…
Dystonia Physio Training at Queen Square Hospital in London
Sharing knowledge, building confidence and improving physiotherapy for people living with dystonia Dystonia Europe was delighted to return to Queen Square Hospital in London for the second Dystonia Physio Workshop, bringing together 20 physiotherapists from the UK, Germany, Ireland and Spain. The day began with Dr Anna Sadnicka, neurologist at Queen Square, who gave an…
The Danish Dystonia Association’s Event 3 “Congratulations on Your Diagnosis – Now You’re on Your Own”
The Danish Dystonia Association’s Event 3 “Congratulations on Your Diagnosis – Now You’re on Your Own” A discussion between Chair Pia Vejle and Vice-Chair Sanne Rasmussen About Folkemødet Folkemødet – also known in English as the Danish Democracy Festival or the People’s Meeting – is Denmark’s largest annual festival of democracy. It takes place on…
Tristan’s Journey: More Than Dystonia
The Beginning Tristan arrived right on time, a perfect start with no complications. But around 5–6 months old, we began to notice something wasn’t right. He was making unusual, repetitive movements—and he cried so much, in distress we couldn’t soothe. We went back and forth to doctors, tried different formulas, reflux medications… yet nothing brought…
The Danish Dystonia Association’s Event 1 “Betrayed by Your Own Brain – A Conversation About Dystonia and Treatment”
EVENT 1 AT FOLKEMØDET 2026 Betrayed by Your Own Brain – A Conversation About Dystonia and Treatment Danish Dystonia Association About Folkemødet Folkemødet, also known in English as the Danish Democracy Festival or the People’s Meeting, is Denmark’s largest annual festival of democracy. Held on the island of Bornholm, it brings together politicians, organisations, professionals,…
