I was diagnosed with blepharospasm 20 years ago. My symptoms began in the autumn of 2005 when one eye began to clamp shut involuntarily. I found this a bit concerning but didn’t really take it seriously until my other eye began to do the same which soon after. I was very shocked and upset at…
Sarah Perides – Advanced Nurse Practitioner
For over 15 years, I have had the privilege of working as an Advanced Nurse Practitioner within the Complex Motor Disorder Service at Evelina Children’s Hospital in London, caring for children and young people living with dystonia and movement disorders. Our service focuses on assessing and supporting young people who may benefit from surgical interventions…
DMA Winner 2025, Dr. Ahmet Kaymak Receives the David Marsden Award
Our congratulations to Dr. Ahmet Kaymak, from the BioRobotics Institute of Scuola Superiore Sant’Anna in Italy who has been selected as winner of the David Marsden Award 2025 for his paper: Spiking Patterns in the Globus Pallidus Highlight Convergent Neural Dynamics across Diverse Genetic Dystonia Syndromes Edwige Ponseel, President of Dystonia Europe said “The Dystonia Europe patient…
Meet Becky Johnson – My Dystonia Story
The Positive Twist has profoundly uplifted me and infused me with the resilience to continue my journey. I’m sincerely grateful for the work you’re doing. In 1997, as a passionate college swimmer, I faced the heartbreaking decision to abandon my senior year due to a debilitating condition that caused my neck to involuntarily pull to…
It’s Dystonia Awareness Month, and as always, we have lots of activities planned!
WEBINARS There is one webinar planned this month: ‘DBS Select: An Interactive Experience’ will be held on Wednesday, September 10 from 18.00-19.30 hrs CET. DBS Select is an educational tool designed to better inform patients and caregivers about deep brain stimulation (DBS) – a technique widely used to treat movement disorders, such as dystonia. Join Dr….
