Dystonie Vereniging
Chairman: ing. Robert Scholten
Adress:
Bredaseweg 108a 4902 NS Oosterhout (Noord-Brabant)
The Netherlands
Contact:
Phone: 076 514 07 65
Email: secretariaat@dystonievereniging.nl
Website: www.dystonievereniging.nl
Facebook: www.facebook.com/dystonievereniging
Linkedin: www.linkedin.com
Instagram: www.instagram.com/dystonie_vereniging/
The Dutch Dystonia Association was founded in 1985 and one of the fist dystonia patients groups in Europe. There are about 1250 members and around 450 donors throughout the Netherlands. Once a year we held the National dystonia day, mostly in July. In every province (12) we yearly held a (digital) fellow sufferers meeting. Our membership magazine is called ‘Tonus’. We have around 16 brochures about different aspects of dystonia. We have a professional secretary who is available 8 hours a day, 5 days a week. Each province has his own contact person for patients support.
