Beginning of February the Swedish Dystonia Association held its Annual General Assembly in Stockholm. About 20 people attended the event and there was also a representative from the Norwegian Dystonia Association. At the formal meeting a new Chairman was elected. His name is Mats Nyberg and he is a teacher in physics and math at…
Toxins 2024 Congress in Berlin
Mid January the Toxins 2024 congress was held at the Estrel Conference Center in Berlin in Germany. The conference was a great success with over 1200 participants from 59 countries. Executive Director of Dystonia Europe, Monika Benson, took part as the only non-profit organization. With a small table with information material in the exhibition hall…
Adam — Always Missed
It is now over a year that you have been missed and you will always be missed. Your legacy and work live on in so many of our projects and activities. We are always so grateful for all you have done for the dystonia community. You brought energy, inspiration and a new vision to our…
Hello There – Meet Julia from Germany
What is your name? My Name is Julia Kühne. I live in northern Germany, in a city called Rostock. What are the benefits of working within a patient organisation? Working in a patient organization is a very special experience to me, as it is the first time since I was diagnosed with Dystonia, I don’t…
4th National Dystonia Day in Italy
On Sept. 30th Associazione per la Ricerca sulla Distonia (A.R.D.) organised the 4th National Dystonia Day. In order to increase visibility and attention towards dystonia, in 2020 we decided to create a National Day to be held on the last Saturday of September, preceded by articles or interviews published via various means of communication. The…
