EU Commissioner on Health Vytenis Andriukaitis (Lithuania) joined the dystonia awareness campaign Jump for Dystonia last week at the  EU Parliament in Strasbourg and made a jump for dystonia to help raise awareness. The event was hosted by MEP Glennis Willis who said: ‘I am delighted to help raise awareness of this little known brain…

Last week in Brussels, UK MEP (Member of European Parliament) Glenis Willmott and her assistants received DE Executive Director Monika Benson and EU Political Affairs Consultant Heather Clarke to discuss the Jump for Dystonia awareness campaign. We are very grateful to MEP Glenis Willmott and her staff for all their enthusiasm and for hosting the event…

Last weekend the Dystonia Europe D-DAYS 2014 & the 21st Annual Conference was held in Paris, France. Presidents Robert Scholten of Dystonia Europe, and Stéphanie Frehel of AMADYS, welcomed the 120 participants from 18 countries to a two-day meeting with various presentations on dystonia, such as: Dystonia in Children, Oromandibular Dystonia, Writer’s Cramp, Surgical Treatment,…

On September 22 and 23 2014 there will be a course on ”Treatment Approaches for Patients with Dystonia” in Kaiserslautern, in Germany. The course will be in German and held by physiotherapist Heidrunn Pickenbrock, MSc from the Medical School Hannover, Clinic for Neurology, Movement Disorder Section. For more information and registration see: Treatment Approaches for Patients…

Last week the Medtronic Mission in Motion Team organized a Jump for Dystonia event at the Medtronic Tolochenaz headquarters in Switzerland. The « Mission in Motion » team is a group of colleagues representing Medtronic as a social entity which aims to act for its community. Nathalie Courtine, one of the initiators of the event,…