February 5, 2018

Winter Think Tank 2018 

5th Dystonia Europe Think Tank in Lund Sweden  The 5th Dystonia Europe Think Tank meeting was held in Lund, Sweden beginning of February. The DE Board and representatives of our 4 platinum sponsors: Boston Scientific, Ipsen, Medtronic & Merz gathered to discuss projects & activities of 2018.  In our discussions we are guided by the…

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February 3, 2018

Annual Meeting of the Associazione Italiana per la Ricerca sulla Distonia   

On February 3, 2018 A.R.D. held its annual meeting, hosted by Professor  Alberto Albanese at the “Istituto Ospedaliero Humanitas” in Rozzano near Milan.  Usually our annual meeting is divided into two parts. During the first part in the morning some speakers illustrate some different aspects of dystonia. After the lunch break the General assembly for…

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November 8, 2017

Boston Scientific Master Debate in Paris

Almost one hundred dystonia experts and Boston Scientific staff had gathered at the Fillerval Castle north of Paris for the two-day meeting: Boston Scientific International Masters’ Debate: Reshaping the Future of DBS. Presentations followed by debates engaged the participants who contributed to fruitful discussions. Boston Scientific also celebrated its 5th Anniversary since the launch of…

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October 29, 2017

25th Anniversary of the Danish Dystonia Association

This weekend DDF – the Danish Dystonia Association – celebrated its 25th Anniversary. The organization was founded in 1992 and has today a little more than 600 members. The focus of their work is to raise awareness and inform about dystonia, treatment and research. For this very special celebration about 100 dystonia patients and family members…

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