How did Dystonia Europe begin, why was it needed, and who are the people and organisations who have contributed over the past 25 years? THE FORMALITIES The organisation was formed as an association of national dystonia patient groups in Spoleto, Italy, on 18 June, 1993. The name was European Dystonia Federation (EDF) and the…
Report from the Dystonia Europe conference 12-14 April 2018
Advertised as ‘D-Days 2018’, this conference in Brussels marked the 25th anniversary of Dystonia Europe. After an introductory session and three presentations in the European Parliament where several MEPs were present and involved on Thursday 12 April, we were given a guided tour of the heart of this huge building complex. Already a theme was…
Dystonia Europe 25th Anniversary Celebrations and D-DAYs 2018 in Brussels
On 12, 13 and 14 of April the Dystonia Europe 25th Anniversary celebrations took place in Brussels, Belgium with several events and activities. Dystonia Europe Delegates from 16 member organisations participated and arrived in Brussels already on Thursday. They were from Denmark, Finland, Sweden, Norway, France, Belgium, Ireland, Croatia, Italy, Switzerland, Romania, Germany, Poland. The…
Germany | Dystonie-und-Du
On October 14 2017, former members of the self-help group Mannheim / Ludwigshafen decided to found a new SHG: the group Rhein / Neckar. At the same time, the plan to create a new association for people suffering from dystonia matured. Finally, on November 11, Evelyn & Volker Kreiss, Elke & Horst Roth, Susanne &…
Visiting The European Parliament
The Challenges of Dystonia: a Snapshot Across Europe 12 April 2018, D-Days lunch in European Parliament Salon For our 25th Anniversary event we were welcomed into the European Parliament, Brussels by Finnish Member of the European Parliament (MEP) Merja Kyllönen. She explained how she had become involved with Dystonia Europe when she agreed to do…
