At our 25th Anniversary in Brussels we invited speakers and guests to send a ‘dystogram’.  Boston Scientific generously supported the project and produced the specially designed frame.  We encouraged participants to get social and get together in the frame, take a photo and post on Facebook, Instagram or Twitter to congratulate DE and use the…

Interview with Professor Andrea Kühn from the  Charité, University Hospital in Berlin, Germany  The Charité University Medicine in Berlin is Europe’s largest university hospital and offers a comprehensive treatment spectrum at the forefront of medical care for patients from all over the world. One of the clinic’s focuses is the treatment of patients with movement…

My name is Tracey McCann and I was born in Dublin,   Ireland in 1988. I was a healthy and able-bodied child, who upon birth showed no indications of ever having anything other than a ‘normal’ life. However, when I was 8 years old my life took a massive turn when I was  diagnosed with…

Professor Brigitte Girard is a specialized ophthalmologist located in Paris, famous in dystonia and blepharospasm.  She’s the Vice-President of AMADYS (French dystonia association) Scientific Committee for many years.  She’s so dedicated to her patients and her field of work that she has decided to write a book on blepharospasm during her spare time and holidays! …

Hello everyone, My name is Adam. I am a Board Member of Dystonia Europe and Board Secretary of the Polish Dystonia Association. I am also a founder of a Facebook support group for dystonia patients and I run a website called ”Dystonia Good Story”. I am Polish but I live in Ireland.  Paradoxically, my work…