Dystonia Europe Executive Director Monika Benson is a Board Member of EFNA. This week she attended its Management Committee Meeting in Brussels. The work of EFNA is concentrated around four pillars: Awareness, Empowerment, Advocacy, Engagement which guide the EFNA Board on what projects and activities to focus on. At the meeting EFNA Executive Director Donna…
Romania – Report from a Busy Dystonia Awareness Month
The Romanian Association for patients with dystonia: Asociata Children’s Joy organized on the 8 th of September, the 6 th edition of the National Conference dedicated to patients who suffer from various types of dystonia, their families, and specialists who work in this field. The event took place during dystonia awareness month. The event included…
Welcome September – Dystonia Awareness Month – #DAM2018
Dystonia Awareness Month 2018 is here. We are happy to welcome you to a month filled with online activities to raise awareness of dystonia. We encourage our members, partners and followers to support us. Throughout the month short videos, photos, facts and information about the dystonia will be published on our social media channels: Instagram,…
Interview with Professor Dirk Dressler
DE: Congratulations for your new book. What was the idea behind it? DD: The book is based on the concept of our ‘International Congresses on Treatment of Dystonia’, a congress series well established over the last ten years. We want to focus on one disorder only. And for this disorder we want to combine all…
President’s Message | Dystonia Europes 25th Anniversary
Dear all, It is with great pleasure we present this very special Anniversary Edition of our Dystonia Europe blog. You will learn about our 25-year history and also get the latest news from our Anniversary events that took place in Brussels last April. Our Anniversary celebrations kicked off with a special lunch event in the…
