Last April Dr. Pollini, Child Neurologist and Psychiatrist from Rome, Italy, received the very first Dystonia Europe Grant for Patient Care. This is a new initiative for prolonged, comprehensive training in Dystonia, in order to get fully experienced doctors that will provide high quality care for patients, disseminate knowledge, connect with patient associations (in their…
Dystonia Europe 32nd General Assembly
The Dystonia Europe (DE) board and members met on Zoom for the 32nd General Assembly on Saturday 10th May 2025. It was lovely to see so many join us for the general assembly. I much prefer face to face meetings, as I am sure you do too, but it is so much more cost effective…
General Assembly and Member Meeting Norwegian Dystonia Association
Saturday 26th April 49 members of NDF (Norwegian Dystonia Association) gathered for a member meeting and the Annual General Assembly at Quality Hotel Olavsgaard at Skjetten, just outside Oslo, Norway. Vice President of the local association NDF Agder, Randi Corneliussen started the meeting with a welcome song called “Spring has arrived” , a great initiative…
Art for Dystonia – The Power of Courage and Vulnerability through Film Photography and Music
Timișoara hosted ART FOR DYSTONIA between 2nd and 9th October last year, a unique artistic and humanitarian project dedicated to supporting individuals affected by Dystonia. The event organized by the Children’s Joy Association was a success, bringing the beauty and authenticity of film photography and music to the forefront. The exhibition provided visitors with an…
Meet Donald MacPhee – My Dystonia Story
I was 23 when the first signs of dystonia, in my case spasmodic torticollis, appeared. I was living in León, Spain, working as an English language assistant in a secondary school by day and an English language tutor by night. All was well until one day, walking down a street, I felt a small…
