EPF (European Patient Organisation) held 2 webinars this autumn on a project were EU works on a quality label for health and wellness apps. This project is called Label2Enable made possible through funding from Horizon Europe. What will the project do? Label2Enable aims to promote the ISO/TS 82304-2 health app assessment framework and label to support the…
Spastic Dyphonia Days in Norway
Jens Øyvind Loven, Jannicke Devold and Jorid Løvbakk are specialists in spastic dysphonia also called laryngeal dystonia. On the 6th and 7th September 2023 they were happy to participate in a meeting held by the Norwegian Dystonia Association at Hotel Olavsgaard, Skjetten in Norway about the condition and the treatment opportunities. Altogether there were 15…
ESSFN Congress in Stockholm
Congress dinner was held at the Wasa Museum and here Monika is with Boston Scientific representatives Sophie Arajou and Yasmine Lafnoune The 15th ESSFN (European Society for Stereotactic and Functional Neurosurgery) Congress was held during the last week of September at the Waterfront Congress Center in Stockholm Sweden. This congress takes place every other…
Survey on the Use of Non-Traditional Therapies – take part!
Have you ever used acupuncture, herbal medicine or any other alternative treatment for your dystonia? In this survey a research group from Dublin aim to investigate the use of non-traditional therapies (herbal medicines, acupuncture, CBD oil) in people with focal dystonias. The survey should take less than 10 minutes to complete and asks about the…
Dystonia Awareness Month 2023
Dystonia Awareness Month September 2023 was very successful. Thanks to everyone who followed us on our various channels and also for sharing our content further. It means a lot that the material we create is shared and spread to help raise awareness about dystonia. This year focus was very much on the five DystoniaLife videos…
