Available Now! Samuel Belzberg 6th International Dystonia Symposium Summary for the Dystonia Community DMRF is thrilled to share this highly anticipated lay summary of the Samuel Belzberg 6th International Dystonia Symposium (IDS6), held in Dublin, Ireland last year. The symposium drew top dystonia researchers from 32 countries, including 68 faculty members and close to 350 attendees, pushing…
General Assembly and Member Meeting in Timisoara, Romania
Sometime last year board member Catalina persuaded us to hold our annual General Assembly and Dystonia Day conference in her home town of Timișoara, Romania. After months of careful planning the day to travel finally arrived on Wednesday 29th May. I left home at about 3:30am for the 6 o’clock flight to Schipol, Amsterdam. At…
Dr. Stavros Tsagkaris Receives the David Marsden Award 2024
Our congratulations to Dr. Stavros Tsagkaris, from the Evelina London Children’s Hospital in London, UK and the David Marsden Award 2024 for his paper: Metabolic Patterns in Brain 18F-fluorodeoxyglucose PET Relate to Aetiology in Paediatric Dystonia https://dystonia-europe.org/wp-content/uploads/2024/07/tsagkaris-et-al-brain-656e1e43a6c91253670147.pdf On Saturday 29 June Dr. Tsagkaris was presented with the award by Dystonia Europe Executive Director Monika Benson…
My Dystonia Story – Meet Vidar from Norway
My name is Vidar Bjørkli, I am 64 years old and live in Finnsnes, Troms in Norway. I am married to Berit and have two grown up sons. Before my retirement two years ago I worked most of my life (nearly 40 years) as a journalist in the local newspaper Troms Folkeblad in Finnsnes. In…
On-line Dystonia Day 2024
We are delighted to announce our upcoming on-line Dystonia Day on 21 September on Zoom from 10.00 until 13.40. We will hear dystonia expert speakers and a patient testimony. There will also be the possibility to ask questions. Link to registration and the event will be available soon. Program 2024 final
