My story started the summer of 2009, with much discomfort in my eyes. January 2010 I had to stop working and was on sick leave due to extreme sensitivity to light and headaches. I was burned out. I was examined for Sjögren’s disease, infection and different illnesses of the eyes without any results. My eyes…
Cervical Dystonia Patient Journey
The cervical dystonia patient journey was published two years ago. Currently is is being translated into more languages. These are published on the ERN-RND (The European Reference Network for Rare Neurological Diseases) website. https://www.ern-rnd.eu/disease-knowledge-hub/dystonia/ We hope that this patient experience map will support patients who are newly diagnosed as well as other dystonia patients and…
JUST PUBLISHED: The Third New Edition of The Manual of Botulinum Toxin Therapy
The year 2024 begins with a new book: The Manual of Botulinum Toxin Therapy, one of the best-selling botulinum toxin books, has now been published in its third new edition by Cambridge University Press. ‘We are delighted that this book has been able to establish itself over the years as the standard work on…
Medtronic receives CE Mark for the Percept™ RC rechargeable DBS neurostimulator with BrainSense™ technology
The following article, makes reference to certain companies and their products and any opinions expressed should not be taken to be the views of Dystonia Europe or its members. The article are written by respected authors and are provided for the information of Dystonia Europe News readers. The next-generation DBS technology is now available in a…
Adam — Always Missed
It is now over a year that you have been missed and you will always be missed. Your legacy and work live on in so many of our projects and activities. We are always so grateful for all you have done for the dystonia community. You brought energy, inspiration and a new vision to our…
