On several occasions we have asked you, our followers, what you want to see and hear from Dystonia Europe. And the list is long. Many of you wish to hear from other dystonia patients and how they manage their dystonia. You also want to have information on treatments and research. We have therefore decided to…
Dystonia Awareness Videos
Last year late President Adam Kalinowski was leading the project of developing five dystonia awareness videos together with producer Andrew Keogh from Ireland. These videos are now being finalized. The very first showing of them will take place at the Dystonia Day in Dublin on Saturday 3 June. They are also being translated to several…
Updates and News in the Children’s Joy Association -Romania
Update of the new activities that are taking place at the level of Association Children’s Joy in Romania. Under the umbrella of MC Gym Motion, together with our partner Iguana Fight Team and Children’s Joy Association, we obtained a grant of €100,000 non-reimbursable, from European funds, for a period of at least 3 years which…
My Dystonia Story, Jan Bodenbach
It was a cold Friday night when my body began to take away everything that was important to me. Friends, sports and school, in short, everything that was important to me as a teenager. I thought I had twisted my back while playing tennis and that the back pain was due to that. But when…
Prof Dr Dirk Dressler Introduces new Botulinumtoxin in India
India, too, is now producing its own botulinumtoxin drug. It was recently introduced in the presence of Professor Dr Dirk Dressler in Mumbai. ‘We are glad that now also India belongs to the exclusive club of countries producing botulinum toxin drugs’, said Dressler. The product development and the installation of the manufacturing process was supervised…
