First week of March the Dystonia Europe Board met face-to-face in Lund. Monika welcomed the board members to her appartment where the board meeting was held. There were many items on the agenda such as preparation for the annual General Assembly, update on current projects, planning of webinars and meetings. In the evening representatives from…
Press Release article 2025-03-17 Popular muscle imbalance book updated and translated into English
The popular and richly-illustrated book ‘Muscle Imbalance’ is now published in an updated, English version. Written by physiotherapist Johanna Blom, it is primarily intended for physiotherapists but can also be used by other healthcare professionals who meet patients with tonus problems in the form of dystonia and spasticity. It constitutes an important new tool that…
Brain Health & Neurological Conditions, European Parliament
Dystonia Europe participated at “Shaping the Future: Policy Responses to Neurological Challenges” 19 February 2025 at the European Parliament, a meeting of the MEP Interest Group on Brain Health and Neurological Conditions at the European Parliament this week, kindly hosted by Billy Kelleher MEP. This meeting was arranged by EFNA (European Federation of Neurological Associations)….
New Podcast Episode: Amybel Taylor on the pros and cons of DBS surgery for dystonia
In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the support of her parents, made the life-changing decision to undergo DBS surgery. Now in her early 30s, she has…
Exhibitions and Initiatives of the Children’s Joy Association Dedicated to Rare Disease Days
The Children’s Joy Association is committed to standing for patients with Dystonia and is a member of the National Alliance for Rare Diseases being a part of its Board. Some forms of neuromuscular Dystonia are considered rare diseases and the association plays an active role in supporting patients and raising awareness about these conditions. In…
