The week after the Dystonia Europe 25th Anniversary events, NDF, the Norwegian Dystonia Association, held its 25thAnniversary celebration and Annual General Assembly at hotel Olavsgaard, just outside of Oslo. 75 dystonia patients and family members from across Norway had come to the event. Saturday morning, after registration, NDF Chairman Johann Arnfinn Warvik, welcomed everybody to a weekend…
Abstract Book from Dystonia Europe 25th Anniversary Conference
The Abstract Book from our 25th Anniversary Conference and D-DAYs 2018 is now available.
Dystonia Europe 25th Anniversary Celebrations and D-DAYs 2018 in Brussels
On 12, 13 and 14 of April the Dystonia Europe 25th Anniversary celebrations took place in Brussels, Belgium with several events and activities. Dystonia Europe Delegates from 16 member organisations participated and arrived in Brussels already on Thursday. They were from Denmark, Finland, Sweden, Norway, France, Belgium, Ireland, Croatia, Italy, Switzerland, Romania, Germany, Poland. The…
Visiting The European Parliament
The Challenges of Dystonia: a Snapshot Across Europe 12 April 2018, D-Days lunch in European Parliament Salon For our 25th Anniversary event we were welcomed into the European Parliament, Brussels by Finnish Member of the European Parliament (MEP) Merja Kyllönen. She explained how she had become involved with Dystonia Europe when she agreed to do…
Make Work Work – A Brain, Mind & Pain Workshop in the EU Parliament
The first meeting of this year of the MEP Interest Group on Brain, Mind and Pain was held on 21 February. The theme for the event was ‘How can the EU : #MakeWorkWork for young people affected by brain, mind and pain conditions?’ The meeting was hosted by Marian Harkin, co-chair of the Brain, Mind…
