I was 23 when the first signs of dystonia, in my case spasmodic torticollis, appeared. I was living in León, Spain, working as an English language assistant in a secondary school by day and an English language tutor by night. All was well until one day, walking down a street, I felt a small…
Hello There – Meet Lieva from Belgium
What is your name? Lieva Van Langenhove What are the benefits of working within a patient organization? The dystonia association offers recent information about symptoms and treatments and recent advancements. In Belgium there is a good link with academia, so we regularly can meet researchers wanting to explain their work and talk with us about…
Dystonia Europe and Childhood Dystonia Awareness UK
Last January we were planning the webinar on Children, Dystonia and DBS. Dystonia Europe was then put in touch with Adrian Hutchings from Childhood Dystonia Awareness UK support group. We connected and discussed the possibilities of how we can work together to advance the knowledge and understanding of children affected by dystonia. As well as…
Boston Scientific DBS Academy in Budapest
Once a year Boston Scientific organizes the DBS Academy. This year about eighty participants, neurologists, and neurosurgeons from across Europe had come to Budapest in Hungary for the meeting. The latest Deep Brain Stimulation (DBS) technologies from Boston Scientific were displayed in various presentations. The new directional lead with sixteen contacts and improved programming software…
Physiotherapy and Dystonia Course Stage 2 in Newcastle
End of April 12 physiotherapists from around the UK, came together at the Walkergate Park Hospital in Newcastle for a 2-day course about dystonia and physiotherapy. Course leader Johanna Blom, physiotherapist from the Skane University Hospital in Malmö Sweden welcomed everybody. After a round of presentations the day could start. First session was on Dystonia…
