In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the support of her parents, made the life-changing decision to undergo DBS surgery. Now in her early 30s, she has…
New Podcast Episode: Mikko Juutinen on Pivoting Your Career and Hobbies With Dystonia
In the latest episode of ‘The Positive Twist’ podcast we meet Dr Mikko Juutinen, a former practicing dentist who has been diagnosed with dystonia in his hands, legs, calves and back. His diagnosis has led to pivoting in his career, as well as in some of his hobbies. Listen to this inspiring story of overcoming…
The Positive Twist Podcast Season Three is Launched
During Dystonia Awareness Month 2024 season three of the Dystonia Europe podcast was launched. The first episode (of five) features Professor Alfonso Fasano from the Toronto University Hospital. In this episode we have an informative and fascinating conversation about dystonia and DBS. We walk through everything from finding help initially, to diagnosis, treatment, the DBS…
Under Production: Season 2 of Dystonia Europe Podcast – The Positive Twist
The first season of our podcast: The Positive Twist was launched during the pandemic, autumn 2020. We have received much positive feedback and until now the podcast has had over 2300 downloads. We have therefore decided to work on a second season. Interviews and recordings are now taking place for 6 new episodes. First episode…
The Positive Twist a Podcast about Dystonia
In September last year Dystonia Europe launched the first season of its podcast: The Positive Twist. The activity was part of the Digital Dystonia Days project 2020 and made possible with the generous support from Boston Scientific, Ipsen and Medtronic. Together with Amanda Benson at The Rise Factory we developed a programme which included dystonia…