Norway The week after the Dystonia Europe 25th Anniversary events, NDF, the Norwegian Dystonia Association, held its 25th Anniversary celebration and Annual General Assembly at hotel Olavsgaard, just outside of Oslo.  75 dystonia patients and family members from across Norway had come to the event.  Saturday morning, after registration, NDF Chairman Johann Arnfinn Warvik, welcomed…

Training Initiatives for Neurology Advocates [TINA] workshop took place at the Champalimaud Foundation in Lisbon 17th and 18th of April 2018.    The TINA workshops project was launched in 2016 by the European Federation of Neurological Association [EFNA] and is being continued to teach patients how to use the theoretical knowledge gained on these processes,…

The 25th anniversary of Dystonia Europe was held in beautiful city of Brussel between April 12th-14th. The breakdown of D-Days 2018 brought together patients, their care partners and family members, physicians, clinicians, scientists, physiotherapists, and pharmaceutical industry members to discuss cutting edge science in the growing field of dystonia.  The conference program included a visit…

How did Dystonia Europe begin, why was it needed, and who are the people and organisations who have contributed over the past 25 years?   THE FORMALITIES  The organisation was formed as an association of national dystonia patient groups in Spoleto, Italy, on 18 June, 1993. The name was European Dystonia Federation (EDF) and the…

Advertised as ‘D-Days 2018’, this conference in Brussels marked the 25th anniversary of Dystonia Europe. After an introductory session and three presentations in the European Parliament where several MEPs were present and involved on Thursday 12 April, we were given a guided tour of the heart of this huge building complex. Already a theme was…