The Dystona Facst is a new Video Series explaining dystonia. Last January Monika and her daughter Amanda spent 4 days in London to meet with dystonia experts and make video-recordings of them explaining dystonia. Dr. Jean-Pierre Lin at the Evelina Children’s Hospital spent a morning with DE to tell us…
Predicting Antidystonic Effects of Deep Brain Stimulation (DBS) Using Probabilistic Maps
The following article, makes reference to certain companies and their products and any opinions expressed should not be taken to be the views of Dystonia Europe or its members. The articles are written by respected authors and are provided for the information of Dystonia Europe News readers. Deep Brain Stimulation (DBS) is an established therapy…
MyBrainNet
Last year Dystonia Europe was one of the first recipient of the BMP (Brain, Mind and Pain) grant from Pain Alliance Europe and Grünenthal for our innovative project MyBrainNet. This is a platform that allows us to create multiple apps and connect these to one platform, where all data is collected centrally. This central platform…
7th Edition of the Childrens Joy Association Event: Dystonia Rehabilition for Adults and Children in Romania
People with dystonia have participated, as well as their families or but also specialists in the field of rehabilitation. From three cities in Romania -Timisoara, Zalau and Baia Mare. Before the workshop, the patients had a social meeting, in the Dr I. Trifon Medical Clinic, where they could visit the cabinet where physiotherapy is practiced. During…
Tyler’s Hope Think Tank at the University of Florida, USA
On November 12th, 2019, the 10th “Tyler’s Hope Think Tank” took place at the University of Florida, USA. This year around the topic of “DYT-TOR1A dystonia: Finding a road map to cure dystonia”. This meeting and the Tyler’s Hope Foundation are initiatives from the Staab family. The two eldest Staab children, Tyler and Samantha, developed…
