The following article makes reference to certain companies and their products and any opinions expressed should not be taken to be the views of Dystonia Europe or its members. The articles are written by respected authors and are provided for the information of Dystonia Europe News readers. Dystonia is a heterogenous disease, which dramatically affects the…
Norway – Contact Person Training in Bergen Norway by NDF
The Norwegian Dystonia Organisation (NDF) held a training class for contact persons last October in Bergen, Norway. On the webpage NDF have listed contact persons from within the organisation who can be contacted about dystonia. It is important that all contact persons make it clear that they are not medically trained. A contact person is…
Webinar Series on Digital Health and Workshop by EPF
EPF (European Patient Forum) has held a series of webinars in 2020 on Digital Health. Dystonia Europe is a member of EPF (a leading voice for patient organisations in Europe, working with EU stakeholder and expert groups). DE has attended all the webinars and workshops held by EPF in 2020. Some of the topics in…
Meet Pia, Chairwoman of the Danish Dystonia Association
What is your name? My name is Pia Vejle Why do you like helping others? I always had this thing about helping other people, making other people smile is the best gift. When I was around 15 years old (many years ago), it started out when some young children never got to the trips because…
Specialized Physical Therapy Reduces Disability and Pain in Cervical Dystonia
September the 21st was a memorable day for Joost van den Dool. On that day he successfully defended his PhD thesis at the University of Groningen in the Netherlands. His research focused on the effectiveness of a standardized physical therapy program for patients…
