AMADYS, the French association for dystonia patients, gathers its volunteers every two years for a face-to-face day. This year it was January 24th in Paris. Volunteers include our regional delegates, specialists with specific missions (social networks, etc.), and board members. Guest speakers may include specialists on medical or care issues relating to dystonia and children’s…
The Inspiring Journey of Yannick Paredis
Yannick Paredis was born on March 7, 2004, appearing to be a perfectly healthy baby. His early childhood was filled with the joys of playing, learning, and growing. However, when he was five years old, subtle but alarming signs began to emerge. His teacher noticed that he struggled with his pen grip, and his parents…
Welcome to The Three New Board Members
Salvatore is a Board Member of the Italian Dystonia Association A.R.D. Salvatore works as a technical writer at an international company. He works daily in English, gathering and structuring complex information for a diverse audience. His involvement in technology and AI projects ensures that he remains current with innovative solutions. He possesses a broad understanding…
Associazione per la Ricerca sulla Distonia (A.R.D) Awards in Annual Congress of Parkinson and Movement Disorders Society
The 11th Congress of Parkinson and Movement Disorders Society was held in Rome from May 14th to 16th. This Society was founded with a specific attention to Parkinson’s disease; over the years its interests have widened to dementia and movement disorders, stepping into a role of support and reference for patients and caregivers. The Congress…
First Recipient of the Dystonia Europe Grant for Patient Care
Last April Dr. Pollini, Child Neurologist and Psychiatrist from Rome, Italy, received the very first Dystonia Europe Grant for Patient Care. This is a new initiative for prolonged, comprehensive training in Dystonia, in order to get fully experienced doctors that will provide high quality care for patients, disseminate knowledge, connect with patient associations (in their…
