Luc Montigaud is a 24-year-old Business School graduate living near Aix-en-Provence. He has suffered from dystonia since birth, which causes him difficulties with speech and fine motor skills. At the General Assembly in Paris,May 2023, Luc presented his crazy project to AMADYS members: to complete the Tour de France by duathlon (10km run each morning,…
The General Assembly Timisoara: How DE unites Communities and builds Connections
The General Assembly in Timișoara: How Dystonia Europe Unites Communities and Builds Connections Organising the Dystonia Europe General Assembly in Timișoara was an extraordinary experience, filled with enthusiasm and joy. It was wonderful to bring together members and experts from various corners of Europe in a setting that allowed not only for the exchange of…
Autumn Meeting with a Focus on Breathing and Relaxation
For us with dystonia we can never get enough of learning more about breathing, relaxation and the importance of bending and stretching. At the autumn meeting of the Norwegian Dystonia Association in Tromsø on 21 September Ina Borch gave us new and exciting approaches in this regard. – We take our breath for granted, and…
DMRF PRESS RELEASE
Available Now! Samuel Belzberg 6th International Dystonia Symposium Summary for the Dystonia Community DMRF is thrilled to share this highly anticipated lay summary of the Samuel Belzberg 6th International Dystonia Symposium (IDS6), held in Dublin, Ireland last year. The symposium drew top dystonia researchers from 32 countries, including 68 faculty members and close to 350 attendees, pushing…
General Assembly and Member Meeting in Timisoara, Romania
Sometime last year board member Catalina persuaded us to hold our annual General Assembly and Dystonia Day conference in her home town of Timișoara, Romania. After months of careful planning the day to travel finally arrived on Wednesday 29th May. I left home at about 3:30am for the 6 o’clock flight to Schipol, Amsterdam. At…
