15-21 March was the international Brain Awareness Week in 2021, an educational initiative aiming to raise awareness of brain and research. During this week on 16 March, EBC, in partnership with EFNA & GAMIAN-Europe held a webinar on patient engagement in EU funded Brain Research Projects within research, health and policy making. Patient engagement in…
Medtronic Recieves CE Mark Approval for SenSightTM Directinoal Lead System for DBS Therapy
Press Release from Medtronic March 22, 2021 This First-of-its-Kind Directional Lead Combines the Benefits of Directionality with the Power of Sensing DUBLIN, March 22, 2021 /PRNewswire/ — Medtronic plc (NYSE:MDT), the global leader in medical technology, today announced the CE (Conformité Européenne) Mark for the SenSight™ directional lead system for Deep Brain Stimulation (DBS) therapy…
Digital Activities: Dystonia Webinar Series & the Positive Twist Podcast
As already shared in previous newsletters our most important event and activity every year, our annual meeting the D-DAYs Conference 2020 was cancelled due to the Covid-19 pandemic. Together with our partners (Boston Scientific, Ipsen and Medtronic) and the Dystonia Europe team we could rapidly change from the planned face-to-face activities to organizing on-line events…
First Italian Dystonia Day
On September 26th A.R.D. (Associazione per la Ricerca sulla Distonia) organized the first Italian Dystonia Day. At the end of last year we had the idea of creating this day and began to draft some concepts. However, in March we realised that due to the Covid-19 pandemic we were compelled to change our plans. Eventually,…
Botulinum Toxin Therapy: An Update
The therapeutic use of Botulinum Toxin (BT) was established some 40 years ago in ophthalmology by Dr Alan B Scott. Soon its use spread into the therapy of various dystonia indications. Ever since, it has been the backbone of dystonia treatment. Average subject-ive improvement is for most indications in the order of 70 to…
