This year Dystonia Europe is celebrating its 30th Anniversary. Our organisation was formed as an association of national dystonia patient groups in Spoleto, Italy, on 18 June, 1993. The name was European Dystonia Federation (EDF) This process had taken almost a year, with the first contacts at a workshop in Munich, followed by two preparatory…
The Norwegian Dystonia Association Annual General Assembly and 30th Anniversary
In a meeting room, decorated for the Anniversary, the President Johan Arnfinn Warvik of the Norwegian Dystonia Association (NDF), welcomed about 60 members attending the Annual General meeting and 30th Anniversary Celebration at Quality Hotel Olavsgaard, Skjetten, Norway. Many attended which indicates that the organisation is very active and important for many. In addition Johan…
Training for Physiotherapists in Sweden
During the last week of March the second part of the workshop “Physiotherapy and Cervical Dystonia” took place at the Scandic Plaza Hotel in Umeå, Sweden. The first part of this training took place last October. Physiotherapist Johann Blom Together with Göran Olsson from Swedish Dystonia Education, Physiotherapist Johanna Blom welcomed the participants to…
Board Meeting Update
Dystonia Europe had an online board meeting using zoom on the 20th January and another (also on zoom) on the 19th April. On the 28th February we had a board meeting face-to-face in Brussels. Some topics on the agenda were the Video Awareness Project and the upcoming Dystonia Days and Annual General Assembly on the…
Winter Think Tank 2023
From left: Monika Benson, Merete Avery, Jukka Sillanpää, Catalina Crainic, Sissel Buskerud, Susanne Proesche, Ipsen, Gill Ainsley, Oleks Gorbenko – Ipsen and Abdullah Alghourani – Merz Dystonia Europe Winter Think Tank 2023 was held in Brussels on 1st March. Members of the Think Tank are our Platinum sponsors: Ipsen, Merz and Medtronic and all DE…
