Alternative Deep Brain Stimulation Targets in the Treatment of Isolated Dystonic Syndromes: A Multicenter Experience-Based Survey. Professors Krauss, Cif, Limousin and Hariz (well-known experts in DBS treatment for Dystonia for two decades) conducted an international survey (a total of 42 questions), involving 49 specialists from 28 medical centers across 13 countries, shedding light on how…
DMA Winner 2025, Dr. Ahmet Kaymak Receives the David Marsden Award
Our congratulations to Dr. Ahmet Kaymak, from the BioRobotics Institute of Scuola Superiore Sant’Anna in Italy who has been selected as winner of the David Marsden Award 2025 for his paper: Spiking Patterns in the Globus Pallidus Highlight Convergent Neural Dynamics across Diverse Genetic Dystonia Syndromes Edwige Ponseel, President of Dystonia Europe said “The Dystonia Europe patient…
Meet Becky Johnson – My Dystonia Story
The Positive Twist has profoundly uplifted me and infused me with the resilience to continue my journey. I’m sincerely grateful for the work you’re doing. In 1997, as a passionate college swimmer, I faced the heartbreaking decision to abandon my senior year due to a debilitating condition that caused my neck to involuntarily pull to…
It’s Dystonia Awareness Month, and as always, we have lots of activities planned!
WEBINARS There is one webinar planned this month: ‘DBS Select: An Interactive Experience’ will be held on Wednesday, September 10 from 18.00-19.30 hrs CET. DBS Select is an educational tool designed to better inform patients and caregivers about deep brain stimulation (DBS) – a technique widely used to treat movement disorders, such as dystonia. Join Dr….
Dystonia Europe at Expert Training Forum 2025
Mid June Dystonia Europe Executive Director Monika Benson took part in the Expert Training Forum 2025 in Munich, Germany. Together with Stacie Broek, a stroke survivor, they joined a roundtable session in the morning of the first day. They shared patient views on diagnosis, treatment and living with the disease. There were questions from the…
