My name is Mats Nyberg, I am 56 years old and I live in a terraced house just outside Stockholm together with my wife. I have a background as a researcher in quantum chemistry, but since 2003 I have been teaching physics and math in high school. In 2010 I started noticing a twist of…

As both a doctor and a researcher working with people who have movement disorders, I see every day how profoundly dystonia can affect someone’s life. Dystonia is a complex and heterogeneous group of conditions, and too often, that complexity goes unrecognised. Even when research is underway, it doesn’t always align closely enough with the real-world…

I was diagnosed with blepharospasm 20 years ago. My symptoms began in the autumn of 2005 when one eye began to clamp shut involuntarily. I found this a bit concerning but didn’t really take it seriously until my other eye began to do the same which soon after. I was very shocked and upset at…

For over 15 years, I have had the privilege of working as an Advanced Nurse Practitioner  within the Complex Motor Disorder Service at Evelina Children’s Hospital in London, caring for children and young people living with dystonia and movement disorders. Our service focuses on assessing and supporting young people who may benefit from surgical interventions…