For over 15 years, I have had the privilege of working as an Advanced Nurse Practitioner within the Complex Motor Disorder Service at Evelina Children’s Hospital in London, caring for children and young people living with dystonia and movement disorders. Our service focuses on assessing and supporting young people who may benefit from surgical interventions…
DMA Winner 2025, Dr. Ahmet Kaymak Receives the David Marsden Award
Our congratulations to Dr. Ahmet Kaymak, from the BioRobotics Institute of Scuola Superiore Sant’Anna in Italy who has been selected as winner of the David Marsden Award 2025 for his paper: Spiking Patterns in the Globus Pallidus Highlight Convergent Neural Dynamics across Diverse Genetic Dystonia Syndromes Edwige Ponseel, President of Dystonia Europe said “The Dystonia Europe patient…
Meet Becky Johnson – My Dystonia Story
The Positive Twist has profoundly uplifted me and infused me with the resilience to continue my journey. I’m sincerely grateful for the work you’re doing. In 1997, as a passionate college swimmer, I faced the heartbreaking decision to abandon my senior year due to a debilitating condition that caused my neck to involuntarily pull to…
It’s Dystonia Awareness Month, and as always, we have lots of activities planned!
WEBINARS There is one webinar planned this month: ‘DBS Select: An Interactive Experience’ will be held on Wednesday, September 10 from 18.00-19.30 hrs CET. DBS Select is an educational tool designed to better inform patients and caregivers about deep brain stimulation (DBS) – a technique widely used to treat movement disorders, such as dystonia. Join Dr….
DBS Select – A Dystonia Europe Webinar – Sep 10, 2025
On Wednesday, 10 September, 2025, from 18.00 – 19.30hrs CET, Dystonia Europe, in association with Health House and DBS Select will hold an informative webinar. The webinar will feature speakers Dr. Alexandra Boogers (Leuven, Belgium) and Dr. Harith Akram (London, UK), who will introduce the audience to ‘DBS Select’- an educational tool created to better…
