What is your name? I’m Crainic Marius, I live in Timisoara, Romania. What are the benefits of working within a patient organisation? Working in an NGO (non-governmental organisation / non-profit organisation) brings numerous benefits, including positive social impact, personal and professional satisfaction, skill development, building networks, learning and awareness opportunities, diversity and flexibility in the…
Board Meeting and Think Tank in Paris
When my dystonia first started I found it very debilitating and would not leave the house on my own. Fast forward a few years, and lots of rounds of botulinum toxin, and here I am travelling around Europe on my own! I love my work with Dystonia Europe and it has given me lots of…
Medtronic receives CE Mark for the Percept™ RC rechargeable DBS neurostimulator with BrainSense™ technology
The following article, makes reference to certain companies and their products and any opinions expressed should not be taken to be the views of Dystonia Europe or its members. The article are written by respected authors and are provided for the information of Dystonia Europe News readers. The next-generation DBS technology is now available in a…
Annual Meeting 2024 of the Swedish Dystonia Association
Beginning of February the Swedish Dystonia Association held its Annual General Assembly in Stockholm. About 20 people attended the event and there was also a representative from the Norwegian Dystonia Association. At the formal meeting a new Chairman was elected. His name is Mats Nyberg and he is a teacher in physics and math at…
Toxins 2024 Congress in Berlin
Mid January the Toxins 2024 congress was held at the Estrel Conference Center in Berlin in Germany. The conference was a great success with over 1200 participants from 59 countries. Executive Director of Dystonia Europe, Monika Benson, took part as the only non-profit organization. With a small table with information material in the exhibition hall…
