On 10 and 11 of October the Annual Meeting of the ERN-RND network took place in Ljubljana in Slovenia. About 60 experts from all over Europe travelled to take part while 30 participants and some of the speakers joined via Zoom. Local organiser Dr. Ales Maver and ERN-RND project leader Prof Holm Graessner from Tübingen,…
5th National Dystonia Day in Italy
On September 28th Associazione per la Ricerca sulla Distonia ( A.R.D.) celebrated the 5th National Dystonia Day with a convention in Rome. The previous 4 Dystonia Days were online events, this year we decided to meet again in person but the whole Day was broadcast live on our social media for all those who could…
Luc Montigaud: a Tour of France for Dystonia, Research and Promoting Disability in the Workplace!
Luc Montigaud is a 24-year-old Business School graduate living near Aix-en-Provence. He has suffered from dystonia since birth, which causes him difficulties with speech and fine motor skills. At the General Assembly in Paris,May 2023, Luc presented his crazy project to AMADYS members: to complete the Tour de France by duathlon (10km run each morning,…
The General Assembly Timisoara: How DE unites Communities and builds Connections
The General Assembly in Timișoara: How Dystonia Europe Unites Communities and Builds Connections Organising the Dystonia Europe General Assembly in Timișoara was an extraordinary experience, filled with enthusiasm and joy. It was wonderful to bring together members and experts from various corners of Europe in a setting that allowed not only for the exchange of…
Autumn Meeting with a Focus on Breathing and Relaxation
For us with dystonia we can never get enough of learning more about breathing, relaxation and the importance of bending and stretching. At the autumn meeting of the Norwegian Dystonia Association in Tromsø on 21 September Ina Borch gave us new and exciting approaches in this regard. – We take our breath for granted, and…
