The 18th Think Tank was held on the last Monday of October on Zoom. Participants of this meeting were the Dystonia Europe staff and board members and representatives of the Platinum partners. These are Ipsen, Medtronic and Merz. These meetings take place twice a year: once in late winter and once in the autumn. The…
Workshop Presentation: “Advancing Together: Shaping a Brighter Future for NMD Patients”
On October 25-26, 2024, Ljubljana hosted a workshop entitled “Advancing Together: Shaping a Brighter Future for NMD Patients,” an event dedicated to addressing the challenges and opportunities in the field of NMD (Neuromuscular Disorders) across Europe. Day 1: Challenges and Opportunities in Neuromuscular Disorders in Europe The workshop commenced with an official opening where the…
Traveling with Dystonia
I love visiting different countries finding out about their history, culture, fashions and food. My husband and I have a little more time to travel now that we are both retired plus our sons are grown up and have their own children so our money goes a little further too! I can remember very well…
ERN-RND Network Annual Meeting 2024
On 10 and 11 of October the Annual Meeting of the ERN-RND network took place in Ljubljana in Slovenia. About 60 experts from all over Europe had travelled to take part and 30 participants and some of the speakers joined via Zoom. Local organizer Dr. Ales Maver and ERN-RND project leader Prof Holm Graessner from…
ERN-RND Network Annual Meeting 2024
On 10 and 11 of October the Annual Meeting of the ERN-RND network took place in Ljubljana in Slovenia. About 60 experts from all over Europe travelled to take part while 30 participants and some of the speakers joined via Zoom. Local organiser Dr. Ales Maver and ERN-RND project leader Prof Holm Graessner from Tübingen,…
