Both global and national patient leaders gathered for 2 days at the Marriott Opera Ambassador Hotel in Paris. The objective of the meeting was to collaborate with the Ipsen team members on shaping the Ipsen Global Patient-Driven Strategy and Roadmap, the creation of a Patient Charter and ultimately to foster ongoing collaboration between Ipsen and…
The Positive Twist Podcast Season Three is Launched
During Dystonia Awareness Month 2024 season three of the Dystonia Europe podcast was launched. The first episode (of five) features Professor Alfonso Fasano from the Toronto University Hospital. In this episode we have an informative and fascinating conversation about dystonia and DBS. We walk through everything from finding help initially, to diagnosis, treatment, the DBS…
Meet Mikko from Finland
My name is Mikko Juutinen. I am 43 years old, and I live in Muhos, Finland. I have a wife Riikka and we have two children. I am a dentist, but I haven’t done any clinical work for almost two and half years. I am specialising in healthcare. I work as a specialist dentist. I…
Online Dystonia Day Conference September 2024
The Dystonia Europe Board decided that this year our annual conference day would be held online using zoom. We used this method during the covid restrictions and not only did it work really well it was also a great deal cheaper than a face to face meeting. We all still prefer face to face meetings…
Deep Brain Stimulation Nurses Association Annual Conference
Here I am off on my travels again. Not far from my home this time, just a short train ride from Newcastle to Sheffield in Yorkshire. Monika had much further to travel! Monika and I were invited to attend the DBSNA annual meeting held in the Crowne Plaza Hotel, Sheffield. We met at the train…
