Last January we were planning the webinar on Children, Dystonia and DBS. Dystonia Europe was then put in touch with Adrian Hutchings from Childhood Dystonia Awareness UK support group. We connected and discussed the possibilities of how we can work together to advance the knowledge and understanding of children affected by dystonia. As well as…
Boston Scientific DBS Academy in Budapest
Once a year Boston Scientific organizes the DBS Academy. This year about eighty participants, neurologists, and neurosurgeons from across Europe had come to Budapest in Hungary for the meeting. The latest Deep Brain Stimulation (DBS) technologies from Boston Scientific were displayed in various presentations. The new directional lead with sixteen contacts and improved programming software…
EFNA Stronger Connected Workshop in Brussels
Neurological Health Gains a Voice in Europe: Patients, Part of the Solution at EFNA #StrongerConnected Brussels, April 8-9, 2025 — In a crucial time for the European community of patients with neurological diseases, Dystonia Europe had an active and visible presence at the #StrongerConnected workshop organized by the European Federation of Neurological Associations (EFNA) in…
Workshop for Physiotherapists about Dystonia and Physiotherapy
Beginning of April the Swedish Dystonia Association organised together with physiotherapist Johanna Blom from the Skåne University Hospital and partners: Abbvie, Ipsen and Merz, a one day workshop on Dystonia and Physiotherapy. Most participants had already taken part in courses stage 1 and 2 that have been offered in the past. 15 physiotherapists had come…
Winter Think-Tank Meeting in Lund, Sweden
First week of March the Dystonia Europe Board met face-to-face in Lund. Monika welcomed the board members to her appartment where the board meeting was held. There were many items on the agenda such as preparation for the annual General Assembly, update on current projects, planning of webinars and meetings. In the evening representatives from…
