As you were previously informed, in 2021, in collaboration with Dystonia Europe, I launched a digital platform, the Dystonia Physio Exercise Hub, with over 100 exercises for cervical dystonia. It has since become available in 12 different languages, and the exercises are accompanied by models or animations. Only physiotherapists can register on the platform to…
ERN-RND Network Annual Meeting 2024
On 10 and 11 of October the Annual Meeting of the ERN-RND network took place in Ljubljana in Slovenia. About 60 experts from all over Europe had travelled to take part and 30 participants and some of the speakers joined via Zoom. Local organizer Dr. Ales Maver and ERN-RND project leader Prof Holm Graessner from…
The General Assembly Timisoara: How DE unites Communities and builds Connections
The General Assembly in Timișoara: How Dystonia Europe Unites Communities and Builds Connections Organising the Dystonia Europe General Assembly in Timișoara was an extraordinary experience, filled with enthusiasm and joy. It was wonderful to bring together members and experts from various corners of Europe in a setting that allowed not only for the exchange of…
DMRF PRESS RELEASE
Available Now! Samuel Belzberg 6th International Dystonia Symposium Summary for the Dystonia Community DMRF is thrilled to share this highly anticipated lay summary of the Samuel Belzberg 6th International Dystonia Symposium (IDS6), held in Dublin, Ireland last year. The symposium drew top dystonia researchers from 32 countries, including 68 faculty members and close to 350 attendees, pushing…
General Assembly and Member Meeting in Timisoara, Romania
Sometime last year board member Catalina persuaded us to hold our annual General Assembly and Dystonia Day conference in her home town of Timișoara, Romania. After months of careful planning the day to travel finally arrived on Wednesday 29th May. I left home at about 3:30am for the 6 o’clock flight to Schipol, Amsterdam. At…
