The Dystonia Europe Board decided that this year our annual conference day would be held online using zoom. We used this method during the covid restrictions and not only did it work really well it was also a great deal cheaper than a face to face meeting. We all still prefer face to face meetings…

Here I am off on my travels again. Not far from my home this time, just a short train ride from Newcastle to Sheffield in Yorkshire. Monika had much further to travel! Monika and I were invited to attend the DBSNA annual meeting held in the Crowne Plaza Hotel, Sheffield. We met at the train…

As you were previously informed, in 2021, in collaboration with Dystonia Europe, I launched a digital platform, the Dystonia Physio Exercise Hub, with over 100 exercises for cervical dystonia. It has since become available in 12 different languages, and the exercises are accompanied by models or animations. Only physiotherapists can register on the platform to…

The 18th Think Tank was held on the last Monday of October on Zoom. Participants of this meeting were the Dystonia Europe staff and board members and representatives of the Platinum partners. These are Ipsen, Medtronic and Merz. These meetings take place twice a year: once in late winter and once in the autumn. The…

On October 25-26, 2024, Ljubljana hosted a workshop entitled “Advancing Together: Shaping a Brighter Future for NMD Patients,” an event dedicated to addressing the challenges and opportunities in the field of NMD (Neuromuscular Disorders) across Europe. Day 1: Challenges and Opportunities in Neuromuscular Disorders in Europe The workshop commenced with an official opening where the…