What is your name? My name is Bengt-Erik Calles and I live in Sweden. I am President of Dystonia Sweden. I live 5 months of each year at my summerhouse in Hjortnäs, Leksand and the rest of the year in Falun. Both places are situated in Dalarna. What are the benefits of working within…
Very Sad News about Dystonia Europe President Adam Kalinowski
With great sadness and heavy hearts, the Dystonia Europe board brings you the news that our dear friend, board member and President, Adam Kalinowski has passed away. We are in touch with Adam’s family and our thoughts are with them and his close friends at this difficult time. Out of respect for them, we ask…
Finnish Dystonia Days 2022 in Oulu
The Finnish Dystonia Association, a nationwide patient organization, decided to arrange the Dystonia Days Conference in the largest city in Northern Finland, namely Oulu. Some 60 participants assembled to meet people from all over the country, get and give support and naturally, learn from expert speakers, a neurologist, and a neurosurgeon. After two years of…
Dystonia Days in Bergen, Norway 2022
In October the Norwegian Dystonia Association held their autumn meeting in beautiful Bergen, a city on the west coast of Norway. Almost 50 people attended the meeting. The key lecture was Physiotherapy by Anette Holmelid Elvik. She had a very interesting presentation. There were lots of questions from the audience. From left: Sissel Buskerud, Anette…
Survey Results: Assessing diagnosis and care pathways of people living with neurological disorders
Results have recently been published of the European Federation of Neurological Associations’ (EFNA’s) survey ‘Assessing diagnosis and care pathways of people living with neurological disorders in Europe‘, which was developed with the aim of identifying, reporting and beginning to address the varied challenges facing all affected by neurological conditions, either as patients or caregivers, from…
