Dear Friends, I send my very best wishes to you all as you celebrate Dystonia Europe’s thirtieth anniversary! Many, many congratulations and thanks to the large number of people who have contributed so much to the successes of our organisation over those thirty years. This must include not only our DE Board members, staff, advisers,…
Hello There – Meet Claudia, Switzerland
What is your name? My name is Claudia Schmid. I have passed the big 6-0, and I have been married to my childhood sweetheart for the past 45 years now. We have 3 children, who are grown-ups and don’t live at home anymore. We have lived the past 20 years in a beautiful house with…
EFNA – Thank You Joke, Welcome Astri
At the beginning of May EFNA held its 22nd Annual General Assembly in Amsterdam, The Netherlands. Representatives from several neurological umbrella organizations such as Parkinson’s Europe, Pain Alliance Europe, Ataxia Europe, Restless Legs Europe etc attended the meeting. There were roundtable discussions on the IGAP* initiative and how to implement this across Europe. The formal…
Dystonia Webinars
On several occasions we have asked you, our followers, what you want to see and hear from Dystonia Europe. And the list is long. Many of you wish to hear from other dystonia patients and how they manage their dystonia. You also want to have information on treatments and research. We have therefore decided to…
Dystonia Awareness Videos
Last year late President Adam Kalinowski was leading the project of developing five dystonia awareness videos together with producer Andrew Keogh from Ireland. These videos are now being finalized. The very first showing of them will take place at the Dystonia Day in Dublin on Saturday 3 June. They are also being translated to several…
