Saturday 26 August DDG Dystonia Dystonie Gesellschaft had a member meeting in Fulda at hotel Esperanto. This also marked 30 years of the organisation and in the evening there was a Anniversary Dinner. Dystonia Europe was invited and President Edwige Ponssel and Operations Manager Merete Avery attended. The meeting started 9.15 in the morning with…
Cervical Dystonia Patient Journey Performance at EAN Congress
At the beginning of July the EAN (European Academy of Neurology) 2023 Congress was held in Budapest, Hungary. DE Executive Director Monika Benson attended the event. As reported earlier Dystonia Europe has together with Ipsen and ERN-RND (European Reference Network for Rare Neurological Diseases) developed the Cervical Dystonia Patient Journey which was published in 2022….
The Norwegian Dystonia Association Annual General Assembly and 30th Anniversary
In a meeting room, decorated for the Anniversary, the President Johan Arnfinn Warvik of the Norwegian Dystonia Association (NDF), welcomed about 60 members attending the Annual General meeting and 30th Anniversary Celebration at Quality Hotel Olavsgaard, Skjetten, Norway. Many attended which indicates that the organisation is very active and important for many. In addition Johan…
Training for Physiotherapists in Sweden
During the last week of March the second part of the workshop “Physiotherapy and Cervical Dystonia” took place at the Scandic Plaza Hotel in Umeå, Sweden. The first part of this training took place last October. Physiotherapist Johann Blom Together with Göran Olsson from Swedish Dystonia Education, Physiotherapist Johanna Blom welcomed the participants to…
Special Workshop on Physiotherapy for Cervical Dystonia
End of October the first meeting of a 3-day workshop on Physiotherapy and Cervical Dystonia was held in Umeå in Northern Sweden. Physiotherapist Johanna Blom from Skåne University Hospital in Malmö, Sweden, gave an introduction to what dystonia is and how it is treated. A demonstration patient was invited to take part in the…
