For us with dystonia we can never get enough of learning more about breathing, relaxation and the importance of bending and stretching. At the autumn meeting of the Norwegian Dystonia Association in Tromsø on 21 September Ina Borch gave us new and exciting approaches in this regard. – We take our breath for granted, and…
Walking with Alpacas – Happiness on Four Legs
Our Berlin dystonia group “DyD” (Dystonia and You) enthusiastically accepted a suggestion from a fellow group member to take a group trip to Brandenburg and go on an alpaca hike. Fortunately, we found the wonderful alpaca farm in Pausin, about a 1.5 hours drive from Berlin. The farm made a pleasant impression on us and…
4th National Dystonia Day in Italy
On Sept. 30th Associazione per la Ricerca sulla Distonia (A.R.D.) organised the 4th National Dystonia Day. In order to increase visibility and attention towards dystonia, in 2020 we decided to create a National Day to be held on the last Saturday of September, preceded by articles or interviews published via various means of communication. The…
Finnish Dystonia Association 25th Anniversary
The Finnish Dystonia Association celebrated its 25th anniversary in September in Pori, Finland. As a nationwide organisation, we chose a new city as a venue. Approximately 50 members gathered to meet each other, to receive and provide peer support and to listen to interesting presentations by neurologists, physiotherapists, and rehabilitation psychologists. A new president was…
EPF holds Webinars on Label2Enable
EPF (European Patient Organisation) held 2 webinars this autumn on a project were EU works on a quality label for health and wellness apps. This project is called Label2Enable made possible through funding from Horizon Europe. What will the project do? Label2Enable aims to promote the ISO/TS 82304-2 health app assessment framework and label to support the…