On September 28th Associazione per la Ricerca sulla Distonia ( A.R.D.) celebrated the 5th National Dystonia Day with a convention in Rome. The previous 4 Dystonia Days were online events, this year we decided to meet again in person but the whole Day was broadcast live on our social media for all those who could…
Luc Montigaud: a Tour of France for Dystonia, Research and Promoting Disability in the Workplace!
Luc Montigaud is a 24-year-old Business School graduate living near Aix-en-Provence. He has suffered from dystonia since birth, which causes him difficulties with speech and fine motor skills. At the General Assembly in Paris,May 2023, Luc presented his crazy project to AMADYS members: to complete the Tour de France by duathlon (10km run each morning,…
Autumn Meeting with a Focus on Breathing and Relaxation
For us with dystonia we can never get enough of learning more about breathing, relaxation and the importance of bending and stretching. At the autumn meeting of the Norwegian Dystonia Association in Tromsø on 21 September Ina Borch gave us new and exciting approaches in this regard. – We take our breath for granted, and…
Walking with Alpacas – Happiness on Four Legs
Our Berlin dystonia group “DyD” (Dystonia and You) enthusiastically accepted a suggestion from a fellow group member to take a group trip to Brandenburg and go on an alpaca hike. Fortunately, we found the wonderful alpaca farm in Pausin, about a 1.5 hours drive from Berlin. The farm made a pleasant impression on us and…
4th National Dystonia Day in Italy
On Sept. 30th Associazione per la Ricerca sulla Distonia (A.R.D.) organised the 4th National Dystonia Day. In order to increase visibility and attention towards dystonia, in 2020 we decided to create a National Day to be held on the last Saturday of September, preceded by articles or interviews published via various means of communication. The…
