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Home › Media › Newsletters › News

March 18, 2024

Annual Meeting 2024 of the Swedish Dystonia Association

  • Newsletter Spring 2024
  • Newsletters
  • Uncategorized

Beginning of February the Swedish Dystonia Association held its Annual General Assembly in Stockholm. About 20 people attended the event and there was also a representative from the Norwegian Dystonia Association. At the formal meeting a new Chairman was elected. His name is Mats Nyberg and he is a teacher in physics and math at…

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March 13, 2024

Toxins 2024 Congress in Berlin

  • Newsletter Spring 2024
  • Newsletters
  • Uncategorized

Mid January the Toxins 2024 congress was held at the Estrel Conference Center in Berlin in Germany. The conference was a great success with over 1200 participants from 59 countries. Executive Director of Dystonia Europe, Monika Benson, took part as the only non-profit organization. With a small table with information material in the exhibition hall…

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February 25, 2024

Adam — Always Missed

  • Newsletter Winter 2023
  • Newsletters
  • Uncategorized

It is now over a year that you have been missed and you will always be missed. Your legacy and work live on in so many of our projects and activities. We are always so grateful for all you have done for the dystonia community. You brought energy, inspiration and a new vision to our…

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February 10, 2024

Hello There – Meet Julia from Germany

  • Newsletter Winter 2023
  • Newsletters
  • Uncategorized

What is your name? My Name is Julia Kühne. I live in northern Germany, in a city called Rostock. What are the benefits of working within a patient   organisation? Working in a patient organization is a very special experience to me, as it is the first time since I was diagnosed with Dystonia, I don’t…

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February 5, 2024

4th National Dystonia Day in Italy

  • Newsletter Winter 2023
  • Newsletters
  • Around Europe and Beyond
  • Uncategorized

On Sept. 30th Associazione per la Ricerca sulla Distonia (A.R.D.) organised the 4th National Dystonia Day. In order to increase visibility and attention towards dystonia, in 2020 we decided to create a National Day to be held on the last Saturday of September, preceded by articles or interviews published via various means of communication. The…

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