Luc Montigaud is a 24-year-old Business School graduate living near Aix-en-Provence. He has suffered from dystonia since birth, which causes him difficulties with speech and fine motor skills. At the General Assembly in Paris,May 2023, Luc presented his crazy project to AMADYS members: to complete the Tour de France by duathlon (10km run each morning,…
Online Dystonia Day Conference September 2024
The Dystonia Europe Board decided that this year our annual conference day would be held online using zoom. We used this method during the covid restrictions and not only did it work really well it was also a great deal cheaper than a face to face meeting. We all still prefer face to face meetings…
Workshop about Physiotherapy and Cervical Dystonia in Newcastle upon Tyne
A one-day course about physiotherapy and cervical dystonia for physiotherapists was organised on Friday at the Silverlink Hotel outside of Newcastle upon Tyne in the UK. 22 physiotherapists, most of them from the local area but also from all over the UK, had come for the course. Gill Ainsley, Secretary and Vice President of Dystonia…
ERN-RND Network Annual Meeting 2024
On 10 and 11 of October the Annual Meeting of the ERN-RND network took place in Ljubljana in Slovenia. About 60 experts from all over Europe had travelled to take part and 30 participants and some of the speakers joined via Zoom. Local organizer Dr. Ales Maver and ERN-RND project leader Prof Holm Graessner from…
The General Assembly Timisoara: How DE unites Communities and builds Connections
The General Assembly in Timișoara: How Dystonia Europe Unites Communities and Builds Connections Organising the Dystonia Europe General Assembly in Timișoara was an extraordinary experience, filled with enthusiasm and joy. It was wonderful to bring together members and experts from various corners of Europe in a setting that allowed not only for the exchange of…
